Parti-CP: Barriers and facilitators for participation in children for cerebral palsy, their siblings and families in Switzerland
At a glance
- Project leader : Dr. Sebastian Grunt, Prof. Dr. Christina Schulze, Dr. Anne Tscherter, Prof. Dr. Hubertus van Hedel
- Project team : Dr. Judith Graser, Johanna Linimayr
- Project status : ongoing
- Funding partner : SNSF (SNF-Projektförderung / Projekt Nr. 212587)
- Project partner : Inselspital Bern, Universität Bern, Kinderspital Zürich - Eleonorenstiftung / Kinderreha Schweiz, Schweizerische Stiftung für das cerebral gelähmte Kind, pädiatrie schweiz Schweizerische Gesellschaft für Pädiatrie, Swiss Academy of Childhood Disability , Schweizerische Gesellschaft für Neuropädiatrie, Interkantonale Hochschule für Heilpädagogik
- Contact person : Christina Schulze
Description
The aim of Parti-CP is to gather profound knowledge about how children with CP, their siblings, and their families as a whole experience participation in Switzerland, then use this knowledge to formulate evidence-based recommendations. The mixed-methods study will include four work packages with qualitative and quantitative elements. Parti-CP is nested within the Swiss Cerebral Palsy Registry at the Institute of Social and Preventative Medicine (ISPM) at the University of Bern, and will be conducted in collaboration with the University Hospital Bern, the Swiss Children’s Rehab at the Children’s Hospital Zurich, and the Zurich University of Applied Sciences (ZHAW).