Susanne de Wolf-Linder, PhD cand, MScN Palliative Care, RN

ZHAW Gesundheit
Institut für Pflege
Katharina-Sulzer-Platz 9
8400 Winterthur

+41 (0) 58 934 43 78
susanne.dewolf-linder@zhaw.ch

Arbeit an der ZHAW

Tätigkeit

Wissenschaftliche Mitarbeiterin / Dozentin
Projektmanagement der SENIORS Projekte

Berufserfahrung

Wissenschaftliche Mitarbeiterin
ZHAW
08 / 2022 - heute
Wissenschaftliche Mitarbeiterin
ZHAW
10 / 2016 - 07 / 2022
Quality Improvement Facilitator for the Outcome Assessment and Complexity Collaborative (OACC)
King`s College London, Cicely Saunders Institute
01 / 2014 - 09 / 2016
Clinical Nurse Specialist in Palliative Care
Guy’s and St. Thomas Hospital NHS Foundation Trust
08 / 2015 - 08 / 2016
Research Nurse in Palliative Care
King`s College Hospital NHS Foundation Trust
11 / 2012 - 01 / 2014
Clinical Research Coordinator/Research Nurse
Clinical Research in Oncology and Palliative Medicine. Cantonal Hospital St. Gallen
08 / 2008 - 10 / 2012
Pflegefachfrau akut Palliative Care Station
Royal Marsden Hospital NHS Foundation Trust,
11 / 2007 - 07 / 2008
Pflegefachfrau
Princess Alice Hospice
02 / 2007 - 11 / 2007
Pflegefachfrau
Royal Marsden School of Cancer Nursing and Rehabilitation
01 / 2006 - 01 / 2007
Stv. Stationsleitung
University Hospital Zürich
01 / 2002 - 12 / 2005
Pflegefachfrau
Kantonsspital Chur,
01 / 1999 - 12 / 2001

Aus- und Weiterbildung

Ausbildung

MSc / Palliative Care
King’s College London
08 / 2013 - 08 / 2016
BSc / Nursing
WE`G Hochschule für Gesundheit
09 / 2010 - 10 / 2011
Mentorship in Practice
St. Georges and Kingston University
08 / 2008 - 12 / 2008
Diploma of Higher Education in Cancer Nursing
Royal Marsden School of Cancer Nursing and Rehabilitation
01 / 2006 - 12 / 2006
Höhere Fachschule 1 / Nursing
Berufsschule für Gesundheits- und Krankenpflege
01 / 2000 - 08 / 2001
Pflegefachfrau DN 2
Schule für Gesundheits- und Krankenpflege am Spital Limmathal, Thedosianum
10 / 1994 - 08 / 1998

Netzwerk

Mitglied in Netzwerken

ORCID digital identifier

ORCID ID: 0000-0003-3421-2418

Projekte

Publikationen

Beiträge in wissenschaftlicher Zeitschrift, peer-reviewed

de Wolf-Linder, S., Kramer, I., Reisinger, M., Murtagh, F. E. M., Schubert, M., & Ramsenthaler, C. (2024). Empowering informal caregivers and nurses to take a person-centred view : adaptation and clinical utility of the Integrated Palliative Outcome Scale (IPOS-Dem) for use in acute and community care settings. BMC Geriatrics, 24(1030). https://doi.org/10.1186/s12877-024-05608-8
de Wolf-Linder, S., Kramer, I., Hersperger, M., Schubert, M., Bächi, S., Stolz, M., Wolverson, E., & Ramsenthaler, C. (2024). Meaningful patient and public engagement in dissemination : embedding co-production in dementia research. Frontiers in Dementia, 3(1426019). https://doi.org/10.3389/frdem.2024.1426019
Johnson, M. J., Rutterford, L., Sunny, A., Pask, S., de Wolf-Linder, S., Murtagh, F. E. M., & Ramsenthaler, C. (2024). Benefits of specialist palliative care by identifying active ingredients of service composition, structure, and delivery model : a systematic review with meta-analysis and meta-regression. PLOS Medicine, 21(8), e1004436. https://doi.org/10.1371/journal.pmed.1004436
Lehmann-Emele, E., Jansky, M., Clapham, S., de Wolf-Linder, S., Bausewein, C., & Hodiamont, F. (2024). Using normalization process theory to evaluate the use of patient-centred outcome measures in specialist palliative home care : a qualitative interview study. BMC Palliative Care, 23(1). https://doi.org/10.1186/s12904-023-01329-8
Blum, D., Hertler, C., Oberholzer, R., de Wolf-Linder, S., Joerger, M., Driessen, C., & Strasser, F. (2022). Lenalidomide in cancer cachexia : a randomized trial of an anticancer drug applied for anti‐cachexia. JCSM Rapid Communications, 5(1), 68–76. https://doi.org/10.1002/rco2.54
de Wolf-Linder, S., Reisinger, M., Gohles, E., Wolverson, E. L., Schubert, M., & Murtagh, F. E. M. (2022). Are nurse’s needs assessment methods robust enough to recognise palliative care needs in people with dementia? : a scoping review. BMC Nursing, 21(194). https://doi.org/10.1186/s12912-022-00947-6
Chiappinotto, S., Papastavrou, E., Efstathiou, G., Andreou, P., Stemmer, R., Ströhm, C., Schubert, M., de Wolf-Linder, S., Longhini, J., & Palese, A. (2022). Antecedents of unfinished nursing care : a systematic review of the literature. BMC Nursing, 21(1), 137. https://doi.org/10.1186/s12912-022-00890-6
Spichiger, F., Koppitz, A. L., de Wolf-Linder, S., Murtagh, F. E. M., Volken, T., & Larkin, P. (2021). Improving caring quality for people with dementia in nursing homes using IPOS‐Dem : a stepped‐wedge cluster randomized controlled trial protocol. Journal of Advanced Nursing, 77(10), 4234–4245. https://doi.org/10.1111/jan.14953
Hodiamont, F., Hock, H., Ellis-Smith, C., Evans, C., de Wolf-Linder, S., Jünger, S., Diehl-Schmid, J., Burner-Fritsch, I., & Bausewein, C. (2021). Culture in the spotlight : cultural adaptation and content validity of the integrated palliative care outcome scale for dementia : a cognitive interview study. Palliative Medicine, 35(5), 962–971. https://doi.org/10.1177/02692163211004403
Blum, D., de Wolf-Linder, S., Oberholzer, R., Brändle, M., Hundsberger, T., & Strasser, F. (2021). Natural ghrelin in advanced cancer patients with cachexia : a case series. Journal of Cachexia, Sarcopenia and Muscle, 12(2), 506–516. https://doi.org/10.1002/jcsm.12659
Longhini, J., Papastavrou, E., Efstathiou, G., Andreou, P., Stemmer, R., Ströhm, C., Schubert, M., de Wolf-Linder, S., & Palese, A. (2020). Strategies to prevent missed nursing care : an international qualitative study based upon a positive deviance approach. Journal of Nursing Management, 29(3), 572–583. https://doi.org/10.1111/jonm.13176
Johnson, H., Ogden, M., Brighton, L. J., Etkind, S. N., Oluyase, A. O., Chukwusa, E., Yu, P., de Wolf-Linder, S., Smith, P., Bailey, S., Koffman, J., & Evans, C. J. (2020). Patient and public involvement in palliative care research : what works, and why? A qualitative evaluation. Palliative Medicine, 35(1), 151–160. https://doi.org/10.1177/0269216320956819
de Wolf-Linder, S., Dawkins, M., Wicks, F., Pask, S., Eagar, K., Evans, C. J., Higginson, I. J., & Murtagh, F. E. M. (2019). Which outcome domains are important in palliative care and when? : an international expert consensus workshop, using the nominal group technique. Palliative Medicine, 33(8), 1058–1068. https://doi.org/10.1177/0269216319854154
Pinto, C., Bristowe, K., Witt, J., Davies, J. M., de Wolf-Linder, S., Dawkins, M., Guo, P., Higginson, I. J., Daveson, B., & Murtagh, F. E. M. (2018). Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation : a multi-method qualitative study. Annals of Palliative Medicine, 7(Suppl 3), 137–150. https://doi.org/10.21037/apm.2018.09.02
Brighton, L. J., Pask, S., Benalia, H., Bailey, S., Sumerfield, M., Witt, J., de Wolf-Linder, S., Etkind, S. N., Murtagh, F. E. M., Koffman, J., & Evans, C. J. (2018). Taking patient and public involvement online : qualitative evaluation of an online forum for palliative care and rehabilitation research. Research Involvement and Engagement, 4(14). https://doi.org/10.1186/s40900-018-0097-z
Selman, L. E., Daveson, B. A., Smith, M., Johnston, B., Ryan, K., Morrison, R. S., Pannell, C., McQuillan, R., de Wolf-Linder, S., Pantilat, S. Z., Klass, L., Meier, D., Normand, C., & Higginson, I. J. (2017). How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA. Age and Ageing, 46(2), 300–309. https://doi.org/10.1093/ageing/afw193

Schriftliche Konferenzbeiträge, peer-reviewed

de Wolf-Linder, S., Bruschini, M., Kramer, I., Ellis-Smith, C., Schubert, M., Murtagh, F. E. M., & Ramsenthaler, C. (2025, May). A person-centred outcome measure for generalist palliative care in dementia : construct validity, factor analysis, internal consistency, reliability, and responsiveness of the Integrated Palliative Care Outcome Scale – Dementia (IPOS-Dem). 19th World Congress of the European Association for Palliative Care, Helsinki, Finland, 29-31 May 2025.
de Wolf-Linder, S., Schubert, M., Ellis-Smith, C., Reisinger, M., Gohles, E., Hodiamont, F., & Murtagh, F. E. (2021, October 6). Cultural adaptation of the Integrated Palliative Care Outcome Scale for Dementia (IPOS-Dem) for the Swiss context : a focus-interview study with relatives, district nurses and acute care nurses. 17th World Congress of the European Association for Palliative Care (EAPC 2021), Online, 6-8 October 2021. https://doi.org/10.21256/zhaw-23492
de Wolf-Linder, S., Zigan, N., Bosshard, G., Volken, T., Hediger, H., Espin, A., Spichiger, F., Payne, S., & Koppitz, A. L. (2018). How do staff recognise clinical emergencies in a nursing home? : a case study [Conference poster]. Palliative Medicine, 32(1), 215. https://doi.org/10.1177/0269216318787744
de Wolf-Linder, S., Zigan, N., Hediger, H., Volken, T., Bosshard, G., & Koppitz, A. L. (2018). Does an educational pain management intervention in a nursing home improve nurse’s knowledge to decrease pain in patients with dementia? [Conference poster]. Palliative Medicine, 32(1), 214–215. https://doi.org/10.1177/0269216318787744
Pinto, C., Bristowe, K., Witt, J., Shipman, C., Davies, J., de Wolf-Linder, S., Dawkins, M., Higginson, I., Daveson, B., & Murtagh, F. E. M. (2018). Making outcome measures work in the context of deteriorating health - lessons for implementation : a multi-method qualitative study [Conference poster]. Palliative Medicine, 32(1), 204. https://doi.org/10.1177/0269216318769196
de Wolf-Linder, S., Witt, J., Pask, S., Brigthon, L. J., & Daveson, B. A. (2018). Patient and public involvement in palliative care research : a qualitative study to identify motivators and meaningful outcomes [Conference poster]. Palliative Medicine, 32(1), 201. https://doi.org/10.1177/0269216318769196
de Wolf-Linder, S., Dawkins, M., Wicks, F., Pask, S., Eager, K., Evans, C., Higginson, I., & Murtagh, F. E. M. (2018). Which outcome domains are important in palliative care and when? : results of an international expert workshop [Conference poster]. Palliative Medicine, 32(Suppl 1), 206–207. https://doi.org/10.1177/0269216318769196

Weitere Publikationen

de Wolf-Linder, S., Meisser, J., Felder, M., Scheiber-Fleury, C., & Ramsenthaler, C. (2026). Forschung gemeinsam mit Betroffenen, Angehörigen und Fachpersonen für eine nachhaltige, person-zentrierte Versorgung von Personen mit Demenz in der Spitex. NOVAcura, 57(1), 51–59.
Van Es, A., De Toffel, L., Schulz, O., Schmidt, I., Ramsenthaler, C., & de Wolf-Linder, S. (2025, November 27). Implementierung von patientenzentrierten Messinstrumenten in der spezialisierten häuslichen Palliative Care : Lernmomente und was hat sich in der Praxis bewährt? Nationaler Palliative Care Kongress, Biel, Schweiz. 26.-27. November 2025.
de Wolf-Linder, S., Meisser, J., Stüssi, R., Schubert, M., & Ramsenthaler, C. (2025, October 8). Identifying the top three symptoms to manage in dementia : a consensus workshop on the Integrated Palliative Care Outcome Scale Dementia (IPOS-Dem). 35th Alzheimer Europe Conference, Bologna, Italy, 6-8 October 2025.
de Wolf-Linder, S. (2022). Documentation des démences centrée sur la personne. Gerontologie CH : Praxis + Forschung, 2022(2), 18–19. https://doi.org/10.21256/zhaw-30673
de Wolf-Linder, S. (2022). Demenz personenzentriert dokumentieren. Gerontologie CH : Praxis + Forschung, 2022(2), 18–19. https://doi.org/10.21256/zhaw-25432
de Wolf-Linder, S., Kramer, I., Ellis-Smith, C., Hodiamont, F., Reisinger, M., Gohles, E., Murtagh, F. E. M., & Schubert, M. (2022). Separated by a common language : cognitive interview study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the acute care- and district nurse-/community home care setting [Conference poster]. Palliative Medicine, 36(1_suppl), 54–55. https://doi.org/10.1177/02692163221093145
Volken, T., de Wolf-Linder, S., Zigan, N., Braun, A., Spichiger, F., Bosshard, G., & Koppitz, A. L. (2019). Pain intervention for people with dementia in nursing homes (PID): Recognition of pain events in routine nursing home care. 16th World Congress of the European Association for Palliative Care, Berlin, 23-25 May 2019.
Koppitz, A. L., de Wolf-Linder, S., Spichiger, F., Volken, T., & Murthag, F. E. M. (2019, November). Does the POS-DemA improve dementia care in swiss nursing homes? SAMW-Symposium, Bern, 21. November 2019.
Koppitz, A. L., de Wolf-Linder, S., Zigan, N., Braun, A., Spichiger, F., Bosshard, G., & Volken, T. (2019, November). Pain intervention for people with dementia (PID). SAMW-Symposium, Bern, 21. November 2019.
de Wolf-Linder, S., Pask, S., Brighton, L. J., Koffmann, J., Evans, C., & Murthag, F. E. (2016, November 23). Innovating patient and public involvement in palliative care and rehabilitation research. NIHR-CLAHRC: Supportive and Palliative Care Research and Audit Conference, Manchester, United Kingdom, 23 November 2016.

Mündliche Konferenzbeiträge und Abstracts

Hauswirth Siegenthaler, C., Grathwohl-Shaker, R., Corrodi, M., Brunner, L., de Wolf-Linder, S., & Ramsenthaler, C. (2025, November 26). In der Praxis bewährt : nachhaltige PROMs-Implementierung in der Palliativversorgung im Akutspital. Nationaler Palliative Care Kongress, Biel, Schweiz. 26.-27. November 2025.
de Wolf-Linder, S., Bruschini, M., Kramer, I., Ellis-Smith, C., Schubert, M., Murtagh, F. E. M., & Ramsenthaler, C. (2025). A person-centred outcome measure for generalist palliative care in dementia : construct validity, factor analysis, internal consistency, reliability, and responsiveness of the Integrated Palliative Care Outcome Scale – Dementia (IPOS-Dem) [Conference presentation]. Palliative Medicine, 39(2_suppl), 374. https://doi.org/10.1177/02692163251335482
de Wolf-Linder, S., Bruschini, M., Kramer, I., Marbach, C., Schubert, M., & Ramsenthaler, C. (2025). Can an electronic person-centred outcome measure be implemented in a resource-constrained, task-focused setting? Co-productive development of an implementation strategy in the community dementia care setting [Conference presentation]. Palliative Medicine, 39(2_suppl), 460. https://doi.org/10.1177/02692163251335482
de Wolf-Linder, S. (2022, September 6). Erkennung von Schmerzen und weiteren Bedürfnissen bei Menschen mit einer Demenz : sind bekannte Assessment-Methoden robust genug dafür? 3. Nationale Fachtagung GERONTOLOGIE CH, Fribourg, Schweiz, 6. September 2022.
Efstathiou, G., Papastavrou, E., Andreou, P., Longhini, J., Stemmer, R., Ströhm, C., Zigan, N., Schubert, M., de Wolf-Linder, S., & Palese, A. (2022, September 4). Minimizing the phenomenon of missed nursing care : a qualitative international study among nurse managers working in nursing homes. RCN International Nursing Research Conference, Cardiff, United Kingdom, 4-6 September 2022.
de Wolf-Linder, S., Kramer, I., Bruschini, M., Ramsenthaler, C., Murtagh, F. E. M., & Schubert, M. (2022, August 25). Person-centred outcome guided palliative care for people with dementia : SENIORS-D research protocol. National Research Day Palliative Care, Bern, Switzerland, 25 August 2022.
de Wolf-Linder, S., Kupeli, N., Crawley, S., Reisinger, M., Kenten, C., Gohles, E., Ellis-Smith, C., Davies, N., Moore, K., Sleeman, K., Schubert, M., Sampson, E. L., Murtagh, F. E. M., & Evans, C. J. (2021). Using structured, person-centred measures for people with dementia unable to self-report to identify and meet palliative care needs : reflections from empowering better end of life dementia care [Conference presentation]. Abstracts from the 17th World Congress of the EAPC 2021, 35(1_suppl), 8. https://doi.org/10.1177/02692163211035909
Polit, D. F., Sidani, S., Richards, D. A., Willman, A., Kitson, A., Huijben-Schoenmakers, M., Rademaker, A., Scherder, E., Bjuresäter, K., Larsson, M., Bergsten, U., Smith, M. C., Pearson, C., Tropea, S., O’May, F., Irvine, L., Rush, R., Wilson, R., Rahn, A. C., et al. (2017). European academy of nursing science and the Swedish Society of Nursing summer conference 2017 : the future direction of European nursing and nursing research. European Academy of Nursing Science and the Swedish Society of Nursing Summer Conference, Malmö, Sweden, 4-5 July 2017. https://doi.org/10.1186/s12912-017-0218-2
de Wolf-Linder, S., Koppitz, A. L., Moser, A., Spichiger, F., Friederich, H., Blanc, G., Volken, T., & Bosshard, G. (2017, June 26). Patient safety in nursing homes depends on effective communication : how are we doing? European Association for Nursing Science, Malmö, Schweden, 26. Juni 2017.
de Wolf-Linder, S., Pask, S., Brighton, L., Bailey, S., Ewart, C., Daveson, B. A., Koffman, J., Evans, C., & Murtagh, F. E. (2017, May 20). Increasing opportunities for two-way dialogue for patient, family, and public involvement in palliative care research. 15th World Congress of the European Association for Palliative Care (EAPC 2017), Madrid, Spain, 18-20 May 2017.
Koppitz, A. L., de Wolf-Linder, S., Blanc, G., & Bosshard, G. (2017, May 20). Pain Management for people with dementia in nursing homes: unrecognised challenges. European Association for Palliative Care (EAPC), Madrid, Spain, 18-20 May 2017.
de Wolf-Linder, S., & Dawkins, M. (2016, November). Teaching outcome measures. Workshop: King’s College, London, United Kingdom, November 2016.
de Wolf-Linder, S. (2016, November). Feedback to improve care. Workshop: Cicely Saunders Institute King’s College, London, United Kingdom, November 2016.

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