Susanne de Wolf-Linder

Susanne de Wolf-Linder

Susanne de Wolf-Linder

ZHAW School of Health Sciences
Institute of Nursing
Katharina-Sulzer-Platz 9
8400 Winterthur

+41 58 934 43 78
susanne.dewolf-linder@zhaw.ch

Work at ZHAW

Position

Research Associate, Lecturer

Experience

Research Associate
Zurich University of Applied Sciences
08 / 2022 - today
Research Assistant
Zurich University of Applied Sciences
10 / 2016 - 07 / 2022
Quality Improvement Facilitator for the Outcome Assessment and Complexity Collaborative (OACC)
King`s College London, Cicely Saunders Institute
01 / 2014 - 09 / 2016
Clinical Nurse Specialist in Palliative Care
Guy’s and St. Thomas Hospital NHS Foundation Trust
08 / 2015 - 08 / 2016
Research Nurse in Palliative Care
King`s College Hospital NHS Foundation Trust
11 / 2012 - 01 / 2014
Clinical Research Coordinator/Research Nurse
Clinical Research in Oncology and Palliative Medicine. Cantonal Hospital St. Gallen
08 / 2008 - 10 / 2012
Staff nurse with senior duties on acute Palliative Care Ward
Royal Marsden Hospital NHS Foundation Trust,
11 / 2007 - 07 / 2008
Staff Nurse
Princess Alice Hospice
02 / 2007 - 11 / 2007
Staff Nurse
Royal Marsden School of Cancer Nursing and Rehabilitation
01 / 2006 - 01 / 2007
Deputy ward sister
University Hospital Zürich
01 / 2002 - 12 / 2005
Staff Nurse
Kantonsspital Chur,
01 / 1999 - 12 / 2001

Education and Continuing education

Education

MSc / Palliative Care
King’s College London
08 / 2013 - 08 / 2016
BSc / Nursing
WE`G Hochschule für Gesundheit
09 / 2010 - 10 / 2011
Mentorship in Practice
St. Georges and Kingston University
08 / 2008 - 12 / 2008
Diploma of Higher Education in Cancer Nursing
Royal Marsden School of Cancer Nursing and Rehabilitation
01 / 2006 - 12 / 2006
Higher education 1 / Nursing
Berufsschule für Gesundheits- und Krankenpflege
01 / 2000 - 08 / 2001
Registered Nurse
Schule für Gesundheits- und Krankenpflege am Spital Limmathal, Thedosianum
10 / 1994 - 08 / 1998

Network

ORCID digital identifier

ORCID ID: 0000-0003-3421-2418

Projects

Publications

Articles in scientific journal, peer-reviewed

de Wolf-Linder, S. et al. (2024) 'Empowering informal caregivers and nurses to take a person-centred view : adaptation and clinical utility of the Integrated Palliative Outcome Scale (IPOS-Dem) for use in acute and community care settings', BMC Geriatrics, 24(1030). doi: 10.1186/s12877-024-05608-8.
de Wolf-Linder, S. et al. (2024) 'Meaningful patient and public engagement in dissemination : embedding co-production in dementia research', Frontiers in Dementia, 3(1426019). doi: 10.3389/frdem.2024.1426019.
Johnson, M. J. et al. (2024) 'Benefits of specialist palliative care by identifying active ingredients of service composition, structure, and delivery model : a systematic review with meta-analysis and meta-regression', PLOS Medicine, 21(8), p. e1004436. doi: 10.1371/journal.pmed.1004436.
Lehmann-Emele, E. et al. (2024) 'Using normalization process theory to evaluate the use of patient-centred outcome measures in specialist palliative home care : a qualitative interview study', BMC Palliative Care, 23(1). doi: 10.1186/s12904-023-01329-8.
Blum, D. et al. (2022) 'Lenalidomide in cancer cachexia : a randomized trial of an anticancer drug applied for anti‐cachexia', JCSM Rapid Communications, 5(1), pp. 68–76. doi: 10.1002/rco2.54.
de Wolf-Linder, S. et al. (2022) 'Are nurse's needs assessment methods robust enough to recognise palliative care needs in people with dementia? : a scoping review', BMC Nursing, 21(194). doi: 10.1186/s12912-022-00947-6.
Chiappinotto, S. et al. (2022) 'Antecedents of unfinished nursing care : a systematic review of the literature', BMC Nursing, 21(1), p. 137. doi: 10.1186/s12912-022-00890-6.
Spichiger, F. et al. (2021) 'Improving caring quality for people with dementia in nursing homes using IPOS‐Dem : a stepped‐wedge cluster randomized controlled trial protocol', Journal of Advanced Nursing, 77(10), pp. 4234–4245. doi: 10.1111/jan.14953.
Hodiamont, F. et al. (2021) 'Culture in the spotlight : cultural adaptation and content validity of the integrated palliative care outcome scale for dementia : a cognitive interview study', Palliative Medicine, 35(5), pp. 962–971. doi: 10.1177/02692163211004403.
Blum, D. et al. (2021) 'Natural ghrelin in advanced cancer patients with cachexia : a case series', Journal of Cachexia, Sarcopenia and Muscle, 12(2), pp. 506–516. doi: 10.1002/jcsm.12659.
Longhini, J. et al. (2020) 'Strategies to prevent missed nursing care : an international qualitative study based upon a positive deviance approach', Journal of Nursing Management, 29(3), pp. 572–583. doi: 10.1111/jonm.13176.
Johnson, H. et al. (2020) 'Patient and public involvement in palliative care research : what works, and why? A qualitative evaluation', Palliative Medicine, 35(1), pp. 151–160. doi: 10.1177/0269216320956819.
de Wolf-Linder, S. et al. (2019) 'Which outcome domains are important in palliative care and when? : an international expert consensus workshop, using the nominal group technique', Palliative Medicine, 33(8), pp. 1058–1068. doi: 10.1177/0269216319854154.
Pinto, C. et al. (2018) 'Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation : a multi-method qualitative study', Annals of Palliative Medicine, 7(Suppl 3), pp. 137–150. doi: 10.21037/apm.2018.09.02.
Brighton, L. J. et al. (2018) 'Taking patient and public involvement online : qualitative evaluation of an online forum for palliative care and rehabilitation research', Research Involvement and Engagement, 4(14). doi: 10.1186/s40900-018-0097-z.
Selman, L. E. et al. (2017) 'How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA', Age and Ageing, 46(2), pp. 300–309. doi: 10.1093/ageing/afw193.

Written conference contributions, peer-reviewed

de Wolf-Linder, S. et al. (2025) 'A person-centred outcome measure for generalist palliative care in dementia : construct validity, factor analysis, internal consistency, reliability, and responsiveness of the Integrated Palliative Care Outcome Scale – Dementia (IPOS-Dem)', in 19th World Congress of the European Association for Palliative Care, Helsinki, Finland, 29-31 May 2025.
de Wolf-Linder, S. et al. (2021) 'Cultural adaptation of the Integrated Palliative Care Outcome Scale for Dementia (IPOS-Dem) for the Swiss context : a focus-interview study with relatives, district nurses and acute care nurses', in 17th World Congress of the European Association for Palliative Care (EAPC 2021), online, 6-8 October 2021. ZHAW Zürcher Hochschule für Angewandte Wissenschaften. doi: 10.21256/zhaw-23492.
de Wolf-Linder, S. et al. (2018) 'Does an educational pain management intervention in a nursing home improve nurse's knowledge to decrease pain in patients with dementia?', in Palliative Medicine. Bern: Sage, pp. 214–215. doi: 10.1177/0269216318787744.
de Wolf-Linder, S. et al. (2018) 'How do staff recognise clinical emergencies in a nursing home? : a case study', in Palliative Medicine. Bern: Sage, p. 215. doi: 10.1177/0269216318787744.
de Wolf-Linder, S. et al. (2018) 'Patient and public involvement in palliative care research : a qualitative study to identify motivators and meaningful outcomes', in Palliative Medicine. Berne: Sage, p. 201. doi: 10.1177/0269216318769196.
de Wolf-Linder, S. et al. (2018) 'Which outcome domains are important in palliative care and when? : results of an international expert workshop', in Palliative Medicine. Berne: Sage, pp. 206–207. doi: 10.1177/0269216318769196.
Pinto, C. et al. (2018) 'Making outcome measures work in the context of deteriorating health - lessons for implementation : a multi-method qualitative study', in Palliative Medicine. Berne: Sage, p. 204. doi: 10.1177/0269216318769196.

Other publications

de Wolf-Linder, S. et al. (2026) 'Forschung gemeinsam mit Betroffenen, Angehörigen und Fachpersonen für eine nachhaltige, person-zentrierte Versorgung von Personen mit Demenz in der Spitex', NOVAcura, 57(1), pp. 51–59.
Van Es, A. et al. (2025) 'Implementierung von patientenzentrierten Messinstrumenten in der spezialisierten häuslichen Palliative Care : Lernmomente und was hat sich in der Praxis bewährt?', in Nationaler Palliative Care Kongress, Biel, Schweiz. 26.-27. November 2025.
de Wolf-Linder, S. et al. (2025) 'Identifying the top three symptoms to manage in dementia : a consensus workshop on the Integrated Palliative Care Outcome Scale Dementia (IPOS-Dem)', in 35th Alzheimer Europe Conference, Bologna, Italy, 6-8 October 2025.
de Wolf-Linder, S. (2022) 'Documentation des démences centrée sur la personne', Gerontologie CH : Praxis + Forschung, 2022(2), pp. 18–19. doi: 10.21256/zhaw-30673.
de Wolf-Linder, S. (2022) 'Demenz personenzentriert dokumentieren', Gerontologie CH : Praxis + Forschung, 2022(2), pp. 18–19. doi: 10.21256/zhaw-25432.
de Wolf-Linder, S. et al. (2022) 'Separated by a common language : cognitive interview study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the acute care- and district nurse-/community home care setting', in Palliative Medicine. Sage, pp. 54–55. doi: 10.1177/02692163221093145.
Volken, T. et al. (2019) 'Pain intervention for people with dementia in nursing homes (PID): Recognition of pain events in routine nursing home care', in 16th World Congress of the European Association for Palliative Care, Berlin, 23-25 May 2019.
Koppitz, A. L. et al. (2019) 'Does the POS-DemA improve dementia care in swiss nursing homes?', in SAMW-Symposium, Bern, 21. November 2019.
Koppitz, A. L. et al. (2019) 'Pain intervention for people with dementia (PID)', in SAMW-Symposium, Bern, 21. November 2019.
de Wolf-Linder, S. et al. (2016) 'Innovating patient and public involvement in palliative care and rehabilitation research', in NIHR-CLAHRC: Supportive and Palliative Care Research and Audit Conference, Manchester, United Kingdom, 23 November 2016.

Oral conference contributions and abstracts

Hauswirth Siegenthaler, C. et al. (2025) 'In der Praxis bewährt : nachhaltige PROMs-Implementierung in der Palliativversorgung im Akutspital', in Nationaler Palliative Care Kongress, Biel, Schweiz. 26.-27. November 2025.
de Wolf-Linder, S. et al. (2025) 'Can an electronic person-centred outcome measure be implemented in a resource-constrained, task-focused setting? Co-productive development of an implementation strategy in the community dementia care setting', in Palliative Medicine. Sage, p. 460. doi: 10.1177/02692163251335482.
de Wolf-Linder, S. et al. (2025) 'A person-centred outcome measure for generalist palliative care in dementia : construct validity, factor analysis, internal consistency, reliability, and responsiveness of the Integrated Palliative Care Outcome Scale – Dementia (IPOS-Dem)', in Palliative Medicine. Sage, p. 374. doi: 10.1177/02692163251335482.
de Wolf-Linder, S. (2022) 'Erkennung von Schmerzen und weiteren Bedürfnissen bei Menschen mit einer Demenz : sind bekannte Assessment-Methoden robust genug dafür?', in 3. Nationale Fachtagung GERONTOLOGIE CH, Fribourg, Schweiz, 6. September 2022.
Efstathiou, G. et al. (2022) 'Minimizing the phenomenon of missed nursing care : a qualitative international study among nurse managers working in nursing homes', in RCN International Nursing Research Conference, Cardiff, United Kingdom, 4-6 September 2022.
de Wolf-Linder, S. et al. (2022) 'Person-centred outcome guided palliative care for people with dementia : SENIORS-D research protocol', in National Research Day Palliative Care, Bern, Switzerland, 25 August 2022.
de Wolf-Linder, S. et al. (2021) 'Using structured, person-centred measures for people with dementia unable to self-report to identify and meet palliative care needs : reflections from empowering better end of life dementia care', in Abstracts from the 17th World Congress of the EAPC 2021. Sage, p. 8. doi: 10.1177/02692163211035909.
Polit, D. F. et al. (2017) 'European academy of nursing science and the Swedish Society of Nursing summer conference 2017 : the future direction of European nursing and nursing research', in European Academy of Nursing Science and the Swedish Society of Nursing Summer Conference, Malmö, Sweden, 4-5 July 2017. doi: 10.1186/s12912-017-0218-2.
de Wolf-Linder, S. et al. (2017) 'Patient safety in nursing homes depends on effective communication : how are we doing?', in European Association for Nursing Science, Malmö, Schweden, 26. Juni 2017.
Koppitz, A. L. et al. (2017) 'Pain Management for people with dementia in nursing homes: unrecognised challenges', in European Association for Palliative Care (EAPC), Madrid, Spain, 18-20 May 2017.
de Wolf-Linder, S. et al. (2017) 'Increasing opportunities for two-way dialogue for patient, family, and public involvement in palliative care research', in 15th World Congress of the European Association for Palliative Care (EAPC 2017), Madrid, Spain, 18-20 May 2017.
de Wolf-Linder, S. (2016) 'Feedback to improve care', in Workshop: Cicely Saunders Institute King's College, London, United Kingdom, November 2016.
de Wolf-Linder, S. and Dawkins, M. (2016) 'Teaching outcome measures', in Workshop: King's College, London, United Kingdom, November 2016.