Susanne de Wolf-Linder

ZHAW Gesundheit
Institut für Pflege
Katharina-Sulzer-Platz 9
8400 Winterthur

+41 (0) 58 934 43 78
susanne.dewolf-linder@zhaw.ch

Persönliches Profil

Tätigkeit an der ZHAW

Wissenschaftliche Mitarbeiterin Bereich Pflege

Arbeits- und Forschungsschwerpunkte, Spezialkenntnisse

Palliative Care Forschung
Outcome Measures in Palliative Care
Palliative Care Klinische Expertise
Erfahrung in der Zusammenarbeit mit der Allgemeinbevölkerung in Forschungsprojekte zur Verbesserung der Qualität
Erfahrung in Durchführung von Klinischen Studien in Onkologie und Palliative Medizin

Aus- und Fortbildung

Undergraduate studies in nursing, Schule für Gesundheits- und
Krankenpflege am Spital Limmathal, Thedosianum, Urdorferstrasse 98, CH-8952 Schlieren

Higher special nursing studies (HöFa1), Berufsschule für
Gesundheits- und Krankenpflege, Loestrasse 117, CH-7000 Chur

Diploma of Higher Education in Cancer Nursing Academic Level V,
Royal Marsden School of Cancer Nursing and Rehabilitation,
Fulham Road, London, SW3 6JJ

Mentorship in Practice BScN-Module, St. Georges and Kingston
University, London

Bachelor in Nursing Science (BScN) Degree, WE`G Hochschule
für Gesundheit, Mühlemattstrasse 42, Postfach, CH-5100 Aarau

MSc in Palliative Care at King’s College London, Department of
Palliative Care, Policy & Rehabilitation, Cicely Saunders Institute, Bessemer
Road, Denmark Hill, SE5 9PJ

Beruflicher Werdegang

1998 Pflegeausbildung DN II im Theodosianum in Schlieren /ZH

2000 Höhere Fachschule für Pflege HöFa1 in Chur

2006 Vertiefung von Wissen in der onkologischen Krankenpflege Diplom für «Cancer Nursing» am Royal Marsden Hospital NHS Foundation Trust in London.

2007-2012 Spezialisierung in Palliativpflege in England bevor Tätigkeit in der klinischen Onkologie-und Palliativforschung am Kantonsspital St.Gallen.

2012 Research Nurse am Cicely Saunders Institute und King`s College Hospital in London.

2014 Qualitätsbeauftragte für das Outcome Assessment and Complexity Collaborative (OACC) Projekt am Cicely Saunders Institute in London zur fachlichen Unterstützung bei der Einführung von «Outcome-Instrumente» in die Praxis.

2016 Abschluss eines MSc in Palliative Care mit dem Schwerpunktthema Einbezug der Allgemeinbevölkerung in die Palliativforschung

Mitglied in Netzwerken

Projekte

Publikationen

Beiträge in wissenschaftlicher Zeitschrift, peer-reviewed

de Wolf-Linder, Susanne; Reisinger, Margarete; Gohles, Elisabeth; Wolverson, Emma L; Schubert, Maria; Murtagh, Fliss E M,

2022.

Are nurse's needs assessment methods robust enough to recognise palliative care needs in people with dementia? : a scoping review.

BMC Nursing.

21(194).

Verfügbar unter: https://doi.org/10.1186/s12912-022-00947-6
Blum, David; Hertler, Caroline; Oberholzer, Rolf; de Wolf-Linder, Susanne; Joerger, Markus; Driessen, Christoph; Strasser, Florian,

2022.

Lenalidomide in cancer cachexia : a randomized trial of an anticancer drug applied for anti‐cachexia.

JCSM Rapid Communications.

5(1), S. 68-76.

Verfügbar unter: https://doi.org/10.1002/rco2.54
Spichiger, Frank; Koppitz, Andrea Luise; de Wolf-Linder, Susanne; Murtagh, Fliss E. M.; Volken, Thomas; Larkin, Philip,

2021.

Improving caring quality for people with dementia in nursing homes using IPOS‐Dem : a stepped‐wedge cluster randomized controlled trial protocol.

Journal of Advanced Nursing.

77(10), S. 4234-4245.

Verfügbar unter: https://doi.org/10.1111/jan.14953
Hodiamont, Farina; Hock, Helena; Ellis-Smith, Clare; Evans, Catherine; de Wolf-Linder, Susanne; Jünger, Saskia; Diehl-Schmid, Janine; Burner-Fritsch, Isabel; Bausewein, Claudia,

2021.

Culture in the spotlight : cultural adaptation and content validity of the integrated palliative care outcome scale for dementia : a cognitive interview study.

Palliative Medicine.

35(5), S. 962-971.

Verfügbar unter: https://doi.org/10.1177/02692163211004403
Blum, David; de Wolf-Linder, Susanne; Oberholzer, Rolf; Brändle, Michael; Hundsberger, Thomas; Strasser, Florian,

2021.

Natural ghrelin in advanced cancer patients with cachexia : a case series.

Journal of Cachexia, Sarcopenia and Muscle.

12(2), S. 506-516.

Verfügbar unter: https://doi.org/10.1002/jcsm.12659
Johnson, Halle; Ogden, Margaret; Brighton, Lisa Jane; Etkind, Simon Noah; Oluyase, Adejoke O; Chukwusa, Emeka; Yu, Peihan; de Wolf-Linder, Susanne; Smith, Pam; Bailey, Sylvia; Koffman, Jonathan; Evans, Catherine J,

2020.

Patient and public involvement in palliative care research : what works, and why? A qualitative evaluation.

Palliative Medicine.

35(1), S. 151-160.

Verfügbar unter: https://doi.org/10.1177/0269216320956819
Longhini, Jessica; Papastavrou, Evridiki; Efstathiou, Georgios; Andreou, Panayiota; Stemmer, Renate; Ströhm, Christina; Schubert, Maria; de Wolf-Linder, Susanne; Palese, Alvisa,

2020.

Strategies to prevent missed nursing care : an international qualitative study based upon a positive deviance approach.

Journal of Nursing Management.

29(3), S. 572-583.

Verfügbar unter: https://doi.org/10.1111/jonm.13176
de Wolf-Linder, Susanne; Dawkins, Marsha; Wicks, Francesca; Pask, Sophie; Eagar, Kathy; Evans, Catherine J; Higginson, Irene J; Murtagh, Fliss E M,

2019.

Which outcome domains are important in palliative care and when? : an international expert consensus workshop, using the nominal group technique.

Palliative Medicine.

33(8), S. 1058-1068.

Verfügbar unter: https://doi.org/10.1177/0269216319854154
Brighton, Lisa Jane; Pask, Sophie; Benalia, Hamid; Bailey, Sylvia; Sumerfield, Marion; Witt, Jana; de Wolf-Linder, Susanne; Etkind, Simon Noah; Murtagh, Fliss E. M.; Koffman, Jonathan; Evans, Catherine J.,

2018.

Taking patient and public involvement online : qualitative evaluation of an online forum for palliative care and rehabilitation research.

Research Involvement and Engagement.

4(14).

Verfügbar unter: https://doi.org/10.1186/s40900-018-0097-z
Pinto, Cathryn; Bristowe, Katherine; Witt, Jana; Davies, Joanna M.; de Wolf-Linder, Susanne; Dawkins, Marsha; Guo, Ping; Higginson, Irene J.; Daveson, Barbara; Murtagh, Fliss E. M.,

2018.

Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation : a multi-method qualitative study.

Annals of Palliative Medicine.

7(Suppl 3), S. 137-150.

Verfügbar unter: https://doi.org/10.21037/apm.2018.09.02
Selman, L.E.; Daveson, B.A.; Smith, M.; Johnston, B.; Ryan, K.; Morrison, R.S.; Pannell, C.; McQuillan, R.; de Wolf-Linder, Susanne; Pantilat, S.Z.; Klass, L.; Meier, D.; Normand, C.; Higginson, I.J.,

2017.

How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA.

Age and Ageing.

46(2), S. 300-309.

Verfügbar unter: https://doi.org/10.1093/ageing/afw193

Konferenzbeiträge, peer-reviewed

de Wolf-Linder, Susanne; Schubert, Maria; Ellis-Smith, C.; Reisinger, Margarete; Gohles, E.; Hodiamont, F.; Murtagh, F.E.,

2021.

Cultural adaptation of the Integrated Palliative Care Outcome Scale for Dementia (IPOS-Dem) for the Swiss context : a focus-interview study with relatives, district nurses and acute care nurses [Poster].

In:

17th World Congress of the European Association for Palliative Care (EAPC 2021), online, 6-8 October 2021.

ZHAW Zürcher Hochschule für Angewandte Wissenschaften.

Verfügbar unter: https://doi.org/10.21256/zhaw-23492
de Wolf-Linder, Susanne; Zigan, Nicole; Hediger, Hannele; Volken, Thomas; Bosshard, G.; Koppitz, Andrea Luise,

2018.

Does an educational pain management intervention in a nursing home improve nurse's knowledge to decrease pain in patients with dementia? [Poster].

In:

EAPC 2018 Abstract Book.

10th World Research Congress of the European Association for Palliative Care (EAPC), Berne, 24-26 May 2018.

Bern:

Sage.

S. 214-215.

Verfügbar unter: https://doi.org/10.1177/0269216318787744
de Wolf-Linder, Susanne; Zigan, Nicole; Bosshard, G.; Volken, Thomas; Hediger, Hannele; Espin, A.; Spichiger, Frank; Payne, S.; Koppitz, Andrea Luise,

2018.

How do staff recognise clinical emergencies in a nursing home? : a case study [Poster].

In:

EAPC 2018 Abstract Book.

10th World Research Congress of the European Association for Palliative Care (EAPC), Berne, 24-26 May 2018.

Bern:

Sage.

S. 215.

Verfügbar unter: https://doi.org/10.1177/0269216318787744
Pinto, C.; Bristowe, K.; Witt, J.; Shipman, C.; Davies, J.; de Wolf-Linder, Susanne; Dawkins, M.; Higginson, I.; Daveson, B.; Murtagh, F.E.M.,

2018.

Making outcome measures work in the context of deteriorating health - lessons for implementation : a multi-method qualitative study [Poster].

In:

EAPC 2018 Abstract Book.

10th World Research Congress of the European Association for Palliative Care (EAPC), Berne, 24-26 May 2018.

Berne:

Sage.

S. 204.

Verfügbar unter: https://doi.org/10.1177/0269216318769196
de Wolf-Linder, Susanne; Witt, J.; Pask, S.; Brigthon, L.J.; Daveson, B.A.,

2018.

Patient and public involvement in palliative care research : a qualitative study to identify motivators and meaningful outcomes [Poster].

In:

EAPC 2018 Abstract Book.

10th World Research Congress of the European Association for Palliative Care (EAPC), Berne, 24-26 May 2018.

Berne:

Sage.

S. 201.

Verfügbar unter: https://doi.org/10.1177/0269216318769196
de Wolf-Linder, Susanne; Dawkins, M.; Wicks, F.; Pask, S.; Eager, K.; Evans, C.; Higginson, I.; Murtagh, F.E.M.,

2018.

Which outcome domains are important in palliative care and when? : results of an international expert workshop [Poster].

In:

EAPC 2018 Abstract Book.

10th World Research Congress of the European Association for Palliative Care (EAPC), Berne, 24-26 May 2018.

Berne:

Sage.

S. 206-207.

Verfügbar unter: https://doi.org/10.1177/0269216318769196

Weitere Publikationen

de Wolf-Linder, Susanne; Kramer, Iris; Ellis-Smith, Clare; Hodiamont, Farina; Reisinger, Margarete; Gohles, Elisabeth; Murtagh, Fliss E.M.; Schubert, Maria,

2022.

Separated by a common language : cognitive interview study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the acute care- and district nurse-/community home care setting [Poster].

In:

12th World Research Congress of the European Association for Palliative Care (EAPC), online, 18-20 May 2022.

Sage.

S. 54-55.

Verfügbar unter: https://doi.org/10.1177/02692163221093145
de Wolf-Linder, Susanne,

2022.

Demenz personenzentriert dokumentieren.

Gerontologie CH : Praxis + Forschung.

2022(2), S. 18-19.
Koppitz, Andrea Luise; de Wolf-Linder, Susanne; Spichiger, Frank; Volken, Thomas; Murthag, F.E.M.,

2019.

Does the POS-DemA improve dementia care in swiss nursing homes? [Poster].

In:

SAMW-Symposium, Bern, 21. November 2019.
Koppitz, Andrea Luise; de Wolf-Linder, Susanne; Zigan, Nicole; Braun, Astrid; Spichiger, Frank; Bosshard, Georg; Volken, Thomas,

2019.

Pain intervention for people with dementia (PID) [Poster].

In:

SAMW-Symposium, Bern, 21. November 2019.
Volken, Thomas; de Wolf-Linder, Susanne; Zigan, Nicole; Braun, Astrid; Spichiger, Frank; Bosshard, Georg; Koppitz, Andrea Luise,

2019.

Pain intervention for people with dementia in nursing homes (PID): Recognition of pain events in routine nursing home care [Poster].

In:

16th World Congress of the European Association for Palliative Care, Berlin, 23-25 May 2019.
de Wolf-Linder, Susanne; Pask, S.; Brighton, L.J.; Koffmann, J.; Evans, C.; Murthag, F.E.,

2016.

Innovating patient and public involvement in palliative care and rehabilitation research [Poster].

In:

NIHR-CLAHRC: Supportive and Palliative Care Research and Audit Conference, Manchester, United Kingdom, 23 November 2016.

Mündliche Konferenzbeiträge und Abstracts

de Wolf-Linder, Susanne,

2022.

Erkennung von Schmerzen und weiteren Bedürfnissen bei Menschen mit einer Demenz : sind bekannte Assessment-Methoden robust genug dafür?.

In:

3. Nationale Fachtagung GERONTOLOGIE CH, Fribourg, Schweiz, 6. September 2022.
Efstathiou, G.; Papastavrou, E.; Andreou, P.; Longhini, J.; Stemmer, R.; Ströhm, C.; Zigan, N.; Schubert, M.; de Wolf-Linder, S.; Palese, A.,

2022.

Minimizing the phenomenon of missed nursing care : a qualitative international study among nurse managers working in nursing homes.

In:

RCN International Nursing Research Conference, Cardiff, United Kingdom, 4-6 September 2022.
de Wolf-Linder, Susanne; Kramer, Iris; Bruschini, Milena; Ramsenthaler, Christina; Murtagh, F.E.M.; Schubert, Maria,

2022.

Person-centred outcome guided palliative care for people with dementia : SENIORS-D research protocol.

In:

National Research Day Palliative Care, Bern, Switzerland, 25 August 2022.
de Wolf-Linder, Susanne; Kupeli, N.; Crawley, S.; Reisinger, Margarete; Kenten, C.; Gohles, E.; Ellis-Smith, C.; Davies, N.; Moore, K.; Sleeman, K.; Schubert, Maria; Sampson, E.L.; Murtagh, F.E.M.; Evans, C.J.; et al.,

2021.

Using structured, person-centred measures for people with dementia unable to self-report to identify and meet palliative care needs : reflections from empowering better end of life dementia care.

In:

Abstracts from the 17th World Congress of the EAPC 2021.

17th World Congress of the European Association for Palliative Care (EAPC 2021), online, 6-8 October 2021.

Sage.

S. 8.

Verfügbar unter: https://doi.org/10.1177/02692163211035909
de Wolf-Linder, Susanne; Koppitz, Andrea Luise; Moser, A.; Spichiger, Frank; Friederich, H.; Blanc, Geneviève; Volken, Thomas; Bosshard, G.,

2017.

Patient safety in nursing homes depends on effective communication : how are we doing?.

In:

European Association for Nursing Science, Malmö, Schweden, 26. Juni 2017.
de Wolf-Linder, Susanne; Pask, S.; Brighton, L.; Bailey, S.; Ewart, C.; Daveson, B.A.; Koffman, J.; Evans, C.; Murtagh, F.E.,

2017.

Increasing opportunities for two-way dialogue for patient, family, and public involvement in palliative care research.

In:

15th World Congress of the European Association for Palliative Care (EAPC 2017), Madrid, Spain, 18-20 May 2017.
Koppitz, Andrea Luise; de Wolf-Linder, Susanne; Blanc, Geneviève; Bosshard, G.,

2017.

Pain Management for people with dementia in nursing homes: unrecognised challenges.

In:

European Association for Palliative Care (EAPC), Madrid, Spain, 18-20 May 2017.
Polit, Denise F.; Sidani, Souraya; Richards, David A.; Willman, Ania; Kitson, Alison; Huijben-Schoenmakers, Marleen; Rademaker, Arno; Scherder, Erik; Bjuresäter, Kaisa; Larsson, Maria; Bergsten, Ulrika; Smith, Margaret Coulter; Pearson, Claire; Tropea, Savina; O’May, Fiona; Irvine, Lindesay; Rush, Robert; Wilson, Rowena; Rahn, Anne C.; Behncke, Anja; Buhl, Anke; Köpke, Sascha; Rodrigues, Maria Goreti Da Rocha; Shaha, Maya; Hjelm, Markus; Bohman, Doris M.; Willman, Ania; Kristensson, Jimmie; Holst, Göran; Øverlie, Anne; Machiels, Mariska; Zwakhalen, Sandra M. G.; Metzelthin, Silke F.; Hamers, Jan P. H.; Darcy, Laura; Karlsson, Katarina; Galvin, Kathleen; Van Hecke, Ann; Malfait, Simon; Eeckloo, Kristof; Råberus, Anna; Holmström, Inger K.; Sundler, Annelie J.; Dijkstra, Ate; Gesar, Berit; Bååth, Carina; Hedin, Hanne; Hommel, Ami; Helou, Nancy; Shaha, Maya; Zanchi, Anne; Varsi, Cecilie; Børøsund, Elin; Mirkovic, Jelena; Marcheschi, Elizabeth; Von Koch, Lena; Pessah-Rasmussen, Hélène; Elf, Marie; Audulv, Åsa; Kneck, Åsa; Koppitz, Andrea Luise; de Wolf-Linder, Susanne; Blanc, Geneviève; Bosshard, Georg; Volken, Thomas,

2017.

European academy of nursing science and the Swedish Society of Nursing summer conference 2017 : the future direction of European nursing and nursing research.

In:

European Academy of Nursing Science and the Swedish Society of Nursing Summer Conference, Malmö, Sweden, 4-5 July 2017.

Verfügbar unter: https://doi.org/10.1186/s12912-017-0218-2
de Wolf-Linder, Susanne,

2016.

Feedback to improve care.

In:

Workshop: Cicely Saunders Institute King's College, London, United Kingdom, November 2016.
de Wolf-Linder, Susanne; Dawkins, Marsha,

2016.

Teaching outcome measures.

In:

Workshop: King's College, London, United Kingdom, November 2016.

Publikationen vor Tätigkeit an der ZHAW

Häne H, Oberholzer R, Walker J, Hopkinson JB, de Wolf-Linder S, Strasser F.(2013) “Psychosocial Consequences of Cancer Cachexia: The Development of an Item Bank”. J Pain Symptom Manage. pii: S0885-3924(13)00147-4. doi: 10.1016/j.jpainsymman.2013.01.008. [Epub ahead of print]

Thomas R Osborne, Christina Ramsenthaler, Susanne de Wolf-Linder, Stephen A Schey, Richard J Siegert, Polly M Edmonds, Irene J Higginson (2014) Understanding what matter most to people with multiple myeloma: a qualitative study of views on quality of life. BMC Cancer 14:496.

Matthew Maddocks, Matthew Jones, Thomas Snell, Bronwen Connolly, Susanne de Wolf-Linder, John Moxham, Gerrard F Rafferty (2014) “Ankle dorsiflexor muscle size, compositionand force with ageing and chronic obstructive pulmonary disease” Exp. Physiol. Aug 2014
99(8) 1078-88.

D Blum, D Koeberle, A Omlin, J Walker, R Von Moos, W Mingrone, S Dewolf-Linder, S Hayoz, S Kaasa, F Strasser, K Ribi (2014)“Feasibility and acceptance of electronic monitoring of symptoms and syndromes using a handheld computer in patients with advanced cancer in daily oncology practice” Supp. Care of Cancer (2014) Sep: 22(9) 2425-34.

Daveson BA., de Wolf-Linder S., Witt J., Newson K., Morris C., Higginson IJ., Evans CJ; BuildCARE: Results of a transparent expert consultation on patient and public involvement in palliative care research. Palliat Med. 2015 Apr 30 pii: 0269216315584875. [Epub ahead of print].

Selman, LE., Daveson, BA., Smith, M., Jonston, B., Rzan, K., Morrison, RS, Pannell, C., McQuillan, R., de Wolf-Linder, S., Pantilat, SZ., Klass, L., Meier, D., Normand, C., Higginson, IJ.(2015) How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA. Age and Ageing, 2016 Nov 3, DOI: dx.doi.org/10.1093/ageing/afw193 [ahead of print]

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