Uncovering the hidden socioeconomic impact of juvenile idiopathic arthritis and paving the way for other rare childhood diseases : an international, cross-disciplinary, patient-centered approach (PAVE Consortium)

2024 Marshall, Deborah A.; Gerber, Brittany; Currie, Gillian R.; Antón, Jordi; De Somer, Lien; Dey, Michelle; Egert, Tsipi; Egert, Yona; Henan, Lia; Klotsche, Jens; Mifsut, Laura Martinez; Minden, Kirsten; Normand, Christophe; Porte, David; Saurenmann, Rotraud K.; Swart, Joost F.; Uziel, Yosef; Wilson, Jennifer; Wouters, Carine; Ziv, Amit; Benseler, Susanne M.; Cellucci, Tania; Fiebelkorn, Guillermo; Kohut, Sara A.; Stinson, Jennifer N.; Stringer, Elizabeth; Page, Stacey A.; Wulffraat, Nico; Yeung, Rae S. M.; Riess, Juliane; Milatz, Florian; Niewerth, Martina; Sengler, Claudia; Groesch, Nadine; Liedmann, Ina; Juvalta, Sibylle; Kurt, Pascale; Dratva, Julia; Shaw, David; Adank, Eva; Aeschlimann, Florence; Cannizzaro, Elvira; Huemer, Christian; Kaiser, Daniela; Moerman, Felix; Tenbrock, Klaus; Vanoni, Federica; Wörner, Andreas; Jabalera, Mercè; Vinyets, Joan; Ruiz, Elisabet Puiggros; Arenas, Sonia Carriquí; Giron, Nolvia Castillo; Hernandez, Joan Calzada; Jiménez, Estibaliz Iglesias; Mosquera, Juan M.; Crovato, Andrea Montserrat Zacarias; Guillen, Carolina Estepa; Rodríguez, Patricia Ramírez; Rodrigo, Marina Barraso; Cascajosa, Jesús Díaz; Cortés, Ana Isabel Díaz; Ballus, Marta Morales; Capdevila, Marta Llorens; Bosch, Maria Crespo; Castello, Ariadna Riera; Gavalda, Montserrat Salvado; Martinez, Marta Gonzalez; Segura, Alexia Reyes; Haviv, Ruby; Alon, Shirley; Heshin, Merav; Tirosh, Irit; Aviel, Yonathon Butbul; Aviran, Neta; Semo, Rotem; Hamad, Mohamad; Amarylio, Gil; Dagan, Chen; Lijnen, Lien; Willen, Joanna; Hens, Kristien; Van Goidsenhoven, Leni; De Tollenaere, Hilde