Susanne de Wolf-Linder

Personal profile

Position at the ZHAW

Research Associate

Expertise and research interests

Palliative Care Research
Clinical Expertise in Palliative Care

Educational background

Undergraduate studies in nursing, Schule für Gesundheits- und
Krankenpflege am Spital Limmathal, Thedosianum, Urdorferstrasse 98, CH-8952 Schlieren

Higher special nursing studies (HöFa1), Berufsschule für
Gesundheits- und Krankenpflege, Loestrasse 117, CH-7000 Chur

Diploma of Higher Education in Cancer Nursing Academic Level V,
Royal Marsden School of Cancer Nursing and Rehabilitation,
Fulham Road, London, SW3 6JJ

Mentorship in Practice BScN-Module, St. Georges and Kingston
University, London

Bachelor in Nursing Science (BScN) Degree, WE`G Hochschule
für Gesundheit, Mühlemattstrasse 42, Postfach, CH-5100 Aarau


MSc in Palliative Care at King’s College London, Department of
Palliative Care, Policy & Rehabilitation, Cicely Saunders Institute, Bessemer
Road, Denmark Hill, SE5 9PJ

Membership of networks

• King`s College London, Cicely Saunders Institute, Department for Palliative Care, Rehabilitation, and Policy
• Palliative CH
• Schweizerischer Berufsverband der Pflegefachleute (SBK)

Projects

• Electronic PerSon-cENtred care and Specialized Palliative Care for people with dementla: lmproving the quality of life with Outcome guided Recognition and assessment of relevant Symptoms, neeDs and care issues (eSENIORS) / Team member / Project ongoing
• Begleitung der Implementation patient:innenzentrierter Messinstrumente im Kompetenzentrum Palliative Care im Universitätsspital Zürich USZ / Team member / Project ongoing
• Evaluation vom Pilotprojekt Hospiz im APH Salem in Ennenda (Bethesda AG) / Team member / Project ongoing
• Implementation von Patienten-zentrierten Outcome Messinstrumenten (PROMs) im Palliative Zentrum am Kantonsspital Winterthur / Team member / Project ongoing
• Personenzentrierte Pflege für Menschen mit einer Demenz: Verbesserung der Lebensqualität mittels einer ergebnisgeleiteten systematischen Erfassung relevanter belastender Symptome, Bedürfnisse und Betreuungsfragen / Team member / Project completed
• NM4SAFETY – Strengthening knowledge and competencies of Nurse Managers for a Safe care environment / Team member / Project completed
• Does the POS-DemA improve dementia care in Swiss nursing homes / Team member / Project completed
• Vergleich von Patient:innengruppen mit einem hohen und tiefen Versorgungsgrad bei Spitex Zürich Sihl / Team member / Project completed
• Pain Intervention for people with dementia in nursing homes (PID) / Team member / Project completed

Publications

• de Wolf-Linder, Susanne; Reisinger, Margarete; Gohles, Elisabeth; Wolverson, Emma L; Schubert, Maria; Murtagh, Fliss E M,

  2022.

  Are nurse's needs assessment methods robust enough to recognise palliative care needs in people with dementia? : a scoping review.

  BMC Nursing.

  21(194).

  Available from: https://doi.org/10.1186/s12912-022-00947-6

• Chiappinotto, Stefania; Papastavrou, Evridiki; Efstathiou, Georgios; Andreou, Panayiota; Stemmer, Renate; Ströhm, Christina; Schubert, Maria; de Wolf-Linder, Susanne; Longhini, Jessica; Palese, Alvisa,

  2022.

  Antecedents of unfinished nursing care : a systematic review of the literature.

  BMC Nursing.

  21(1), pp. 137.

  Available from: https://doi.org/10.1186/s12912-022-00890-6

• Blum, David; Hertler, Caroline; Oberholzer, Rolf; de Wolf-Linder, Susanne; Joerger, Markus; Driessen, Christoph; Strasser, Florian,

  2022.

  Lenalidomide in cancer cachexia : a randomized trial of an anticancer drug applied for anti‐cachexia.

  JCSM Rapid Communications.

  5(1), pp. 68-76.

  Available from: https://doi.org/10.1002/rco2.54

• Spichiger, Frank; Koppitz, Andrea Luise; de Wolf-Linder, Susanne; Murtagh, Fliss E. M.; Volken, Thomas; Larkin, Philip,

  2021.

  Improving caring quality for people with dementia in nursing homes using IPOS‐Dem : a stepped‐wedge cluster randomized controlled trial protocol.

  Journal of Advanced Nursing.

  77(10), pp. 4234-4245.

  Available from: https://doi.org/10.1111/jan.14953

• Hodiamont, Farina; Hock, Helena; Ellis-Smith, Clare; Evans, Catherine; de Wolf-Linder, Susanne; Jünger, Saskia; Diehl-Schmid, Janine; Burner-Fritsch, Isabel; Bausewein, Claudia,

  2021.

  Culture in the spotlight : cultural adaptation and content validity of the integrated palliative care outcome scale for dementia : a cognitive interview study.

  Palliative Medicine.

  35(5), pp. 962-971.

  Available from: https://doi.org/10.1177/02692163211004403

• Blum, David; de Wolf-Linder, Susanne; Oberholzer, Rolf; Brändle, Michael; Hundsberger, Thomas; Strasser, Florian,

  2021.

  Natural ghrelin in advanced cancer patients with cachexia : a case series.

  Journal of Cachexia, Sarcopenia and Muscle.

  12(2), pp. 506-516.

  Available from: https://doi.org/10.1002/jcsm.12659

• Johnson, Halle; Ogden, Margaret; Brighton, Lisa Jane; Etkind, Simon Noah; Oluyase, Adejoke O; Chukwusa, Emeka; Yu, Peihan; de Wolf-Linder, Susanne; Smith, Pam; Bailey, Sylvia; Koffman, Jonathan; Evans, Catherine J,

  2020.

  Patient and public involvement in palliative care research : what works, and why? A qualitative evaluation.

  Palliative Medicine.

  35(1), pp. 151-160.

  Available from: https://doi.org/10.1177/0269216320956819

• Longhini, Jessica; Papastavrou, Evridiki; Efstathiou, Georgios; Andreou, Panayiota; Stemmer, Renate; Ströhm, Christina; Schubert, Maria; de Wolf-Linder, Susanne; Palese, Alvisa,

  2020.

  Strategies to prevent missed nursing care : an international qualitative study based upon a positive deviance approach.

  Journal of Nursing Management.

  29(3), pp. 572-583.

  Available from: https://doi.org/10.1111/jonm.13176

• de Wolf-Linder, Susanne; Dawkins, Marsha; Wicks, Francesca; Pask, Sophie; Eagar, Kathy; Evans, Catherine J; Higginson, Irene J; Murtagh, Fliss E M,

  2019.

  Which outcome domains are important in palliative care and when? : an international expert consensus workshop, using the nominal group technique.

  Palliative Medicine.

  33(8), pp. 1058-1068.

  Available from: https://doi.org/10.1177/0269216319854154

• Brighton, Lisa Jane; Pask, Sophie; Benalia, Hamid; Bailey, Sylvia; Sumerfield, Marion; Witt, Jana; de Wolf-Linder, Susanne; Etkind, Simon Noah; Murtagh, Fliss E. M.; Koffman, Jonathan; Evans, Catherine J.,

  2018.

  Taking patient and public involvement online : qualitative evaluation of an online forum for palliative care and rehabilitation research.

  Research Involvement and Engagement.

  4(14).

  Available from: https://doi.org/10.1186/s40900-018-0097-z

• Pinto, Cathryn; Bristowe, Katherine; Witt, Jana; Davies, Joanna M.; de Wolf-Linder, Susanne; Dawkins, Marsha; Guo, Ping; Higginson, Irene J.; Daveson, Barbara; Murtagh, Fliss E. M.,

  2018.

  Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation : a multi-method qualitative study.

  Annals of Palliative Medicine.

  7(Suppl 3), pp. 137-150.

  Available from: https://doi.org/10.21037/apm.2018.09.02

• Selman, L.E.; Daveson, B.A.; Smith, M.; Johnston, B.; Ryan, K.; Morrison, R.S.; Pannell, C.; McQuillan, R.; de Wolf-Linder, Susanne; Pantilat, S.Z.; Klass, L.; Meier, D.; Normand, C.; Higginson, I.J.,

  2017.

  How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA.

  Age and Ageing.

  46(2), pp. 300-309.

  Available from: https://doi.org/10.1093/ageing/afw193

• de Wolf-Linder, Susanne; Schubert, Maria; Ellis-Smith, C.; Reisinger, Margarete; Gohles, E.; Hodiamont, F.; Murtagh, F.E.,

  2021.

  Cultural adaptation of the Integrated Palliative Care Outcome Scale for Dementia (IPOS-Dem) for the Swiss context : a focus-interview study with relatives, district nurses and acute care nurses [poster].

  In:

  17th World Congress of the European Association for Palliative Care (EAPC 2021), online, 6-8 October 2021.

  ZHAW Zürcher Hochschule für Angewandte Wissenschaften.

  Available from: https://doi.org/10.21256/zhaw-23492

• de Wolf-Linder, Susanne; Zigan, Nicole; Hediger, Hannele; Volken, Thomas; Bosshard, G.; Koppitz, Andrea Luise,

  2018.

  Does an educational pain management intervention in a nursing home improve nurse's knowledge to decrease pain in patients with dementia? [poster].

  In:

  EAPC 2018 Abstract Book.

  10th World Research Congress of the European Association for Palliative Care (EAPC), Berne, 24-26 May 2018.

  Bern:

  Sage.

  pp. 214-215.

  Available from: https://doi.org/10.1177/0269216318787744

• de Wolf-Linder, Susanne; Zigan, Nicole; Bosshard, G.; Volken, Thomas; Hediger, Hannele; Espin, A.; Spichiger, Frank; Payne, S.; Koppitz, Andrea Luise,

  2018.

  How do staff recognise clinical emergencies in a nursing home? : a case study [poster].

  In:

  EAPC 2018 Abstract Book.

  10th World Research Congress of the European Association for Palliative Care (EAPC), Berne, 24-26 May 2018.

  Bern:

  Sage.

  pp. 215.

  Available from: https://doi.org/10.1177/0269216318787744

• Pinto, C.; Bristowe, K.; Witt, J.; Shipman, C.; Davies, J.; de Wolf-Linder, Susanne; Dawkins, M.; Higginson, I.; Daveson, B.; Murtagh, F.E.M.,

  2018.

  Making outcome measures work in the context of deteriorating health - lessons for implementation : a multi-method qualitative study [poster].

  In:

  EAPC 2018 Abstract Book.

  10th World Research Congress of the European Association for Palliative Care (EAPC), Berne, 24-26 May 2018.

  Berne:

  Sage.

  pp. 204.

  Available from: https://doi.org/10.1177/0269216318769196

• de Wolf-Linder, Susanne; Witt, J.; Pask, S.; Brigthon, L.J.; Daveson, B.A.,

  2018.

  Patient and public involvement in palliative care research : a qualitative study to identify motivators and meaningful outcomes [poster].

  In:

  EAPC 2018 Abstract Book.

  10th World Research Congress of the European Association for Palliative Care (EAPC), Berne, 24-26 May 2018.

  Berne:

  Sage.

  pp. 201.

  Available from: https://doi.org/10.1177/0269216318769196

• de Wolf-Linder, Susanne; Dawkins, M.; Wicks, F.; Pask, S.; Eager, K.; Evans, C.; Higginson, I.; Murtagh, F.E.M.,

  2018.

  Which outcome domains are important in palliative care and when? : results of an international expert workshop [poster].

  In:

  EAPC 2018 Abstract Book.

  10th World Research Congress of the European Association for Palliative Care (EAPC), Berne, 24-26 May 2018.

  Berne:

  Sage.

  pp. 206-207.

  Available from: https://doi.org/10.1177/0269216318769196

• de Wolf-Linder, Susanne; Kramer, Iris; Ellis-Smith, Clare; Hodiamont, Farina; Reisinger, Margarete; Gohles, Elisabeth; Murtagh, Fliss E.M.; Schubert, Maria,

  2022.

  Separated by a common language : cognitive interview study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the acute care- and district nurse-/community home care setting [poster].

  In:

  12th World Research Congress of the European Association for Palliative Care (EAPC), online, 18-20 May 2022.

  Sage.

  pp. 54-55.

  Available from: https://doi.org/10.1177/02692163221093145

• de Wolf-Linder, Susanne,

  2022.

  Demenz personenzentriert dokumentieren.

  Gerontologie CH : Praxis + Forschung.

  2022(2), pp. 18-19.

• Koppitz, Andrea Luise; de Wolf-Linder, Susanne; Spichiger, Frank; Volken, Thomas; Murthag, F.E.M.,

  2019.

  Does the POS-DemA improve dementia care in swiss nursing homes? [poster].

  In:

  SAMW-Symposium, Bern, 21. November 2019.

• Koppitz, Andrea Luise; de Wolf-Linder, Susanne; Zigan, Nicole; Braun, Astrid; Spichiger, Frank; Bosshard, Georg; Volken, Thomas,

  2019.

  Pain intervention for people with dementia (PID) [poster].

  In:

  SAMW-Symposium, Bern, 21. November 2019.

• Volken, Thomas; de Wolf-Linder, Susanne; Zigan, Nicole; Braun, Astrid; Spichiger, Frank; Bosshard, Georg; Koppitz, Andrea Luise,

  2019.

  Pain intervention for people with dementia in nursing homes (PID): Recognition of pain events in routine nursing home care [poster].

  In:

  16th World Congress of the European Association for Palliative Care, Berlin, 23-25 May 2019.

• de Wolf-Linder, Susanne; Pask, S.; Brighton, L.J.; Koffmann, J.; Evans, C.; Murthag, F.E.,

  2016.

  Innovating patient and public involvement in palliative care and rehabilitation research [poster].

  In:

  NIHR-CLAHRC: Supportive and Palliative Care Research and Audit Conference, Manchester, United Kingdom, 23 November 2016.

• de Wolf-Linder, Susanne,

  2022.

  Erkennung von Schmerzen und weiteren Bedürfnissen bei Menschen mit einer Demenz : sind bekannte Assessment-Methoden robust genug dafür?.

  In:

  3. Nationale Fachtagung GERONTOLOGIE CH, Fribourg, Schweiz, 6. September 2022.

• Efstathiou, G.; Papastavrou, E.; Andreou, P.; Longhini, J.; Stemmer, R.; Ströhm, C.; Zigan, N.; Schubert, M.; de Wolf-Linder, S.; Palese, A.,

  2022.

  Minimizing the phenomenon of missed nursing care : a qualitative international study among nurse managers working in nursing homes.

  In:

  RCN International Nursing Research Conference, Cardiff, United Kingdom, 4-6 September 2022.

• de Wolf-Linder, Susanne; Kramer, Iris; Bruschini, Milena; Ramsenthaler, Christina; Murtagh, F.E.M.; Schubert, Maria,

  2022.

  Person-centred outcome guided palliative care for people with dementia : SENIORS-D research protocol.

  In:

  National Research Day Palliative Care, Bern, Switzerland, 25 August 2022.

• de Wolf-Linder, Susanne; Kupeli, N.; Crawley, S.; Reisinger, Margarete; Kenten, C.; Gohles, E.; Ellis-Smith, C.; Davies, N.; Moore, K.; Sleeman, K.; Schubert, Maria; Sampson, E.L.; Murtagh, F.E.M.; Evans, C.J.; et al.,

  2021.

  Using structured, person-centred measures for people with dementia unable to self-report to identify and meet palliative care needs : reflections from empowering better end of life dementia care.

  In:

  Abstracts from the 17th World Congress of the EAPC 2021.

  17th World Congress of the European Association for Palliative Care (EAPC 2021), online, 6-8 October 2021.

  Sage.

  pp. 8.

  Available from: https://doi.org/10.1177/02692163211035909

• de Wolf-Linder, Susanne; Koppitz, Andrea Luise; Moser, A.; Spichiger, Frank; Friederich, H.; Blanc, Geneviève; Volken, Thomas; Bosshard, G.,

  2017.

  Patient safety in nursing homes depends on effective communication : how are we doing?.

  In:

  European Association for Nursing Science, Malmö, Schweden, 26. Juni 2017.

• de Wolf-Linder, Susanne; Pask, S.; Brighton, L.; Bailey, S.; Ewart, C.; Daveson, B.A.; Koffman, J.; Evans, C.; Murtagh, F.E.,

  2017.

  Increasing opportunities for two-way dialogue for patient, family, and public involvement in palliative care research.

  In:

  15th World Congress of the European Association for Palliative Care (EAPC 2017), Madrid, Spain, 18-20 May 2017.

• Koppitz, Andrea Luise; de Wolf-Linder, Susanne; Blanc, Geneviève; Bosshard, G.,

  2017.

  Pain Management for people with dementia in nursing homes: unrecognised challenges.

  In:

  European Association for Palliative Care (EAPC), Madrid, Spain, 18-20 May 2017.

• Polit, Denise F.; Sidani, Souraya; Richards, David A.; Willman, Ania; Kitson, Alison; Huijben-Schoenmakers, Marleen; Rademaker, Arno; Scherder, Erik; Bjuresäter, Kaisa; Larsson, Maria; Bergsten, Ulrika; Smith, Margaret Coulter; Pearson, Claire; Tropea, Savina; O’May, Fiona; Irvine, Lindesay; Rush, Robert; Wilson, Rowena; Rahn, Anne C.; Behncke, Anja; Buhl, Anke; Köpke, Sascha; Rodrigues, Maria Goreti Da Rocha; Shaha, Maya; Hjelm, Markus; Bohman, Doris M.; Willman, Ania; Kristensson, Jimmie; Holst, Göran; Øverlie, Anne; Machiels, Mariska; Zwakhalen, Sandra M. G.; Metzelthin, Silke F.; Hamers, Jan P. H.; Darcy, Laura; Karlsson, Katarina; Galvin, Kathleen; Van Hecke, Ann; Malfait, Simon; Eeckloo, Kristof; Råberus, Anna; Holmström, Inger K.; Sundler, Annelie J.; Dijkstra, Ate; Gesar, Berit; Bååth, Carina; Hedin, Hanne; Hommel, Ami; Helou, Nancy; Shaha, Maya; Zanchi, Anne; Varsi, Cecilie; Børøsund, Elin; Mirkovic, Jelena; Marcheschi, Elizabeth; Von Koch, Lena; Pessah-Rasmussen, Hélène; Elf, Marie; Audulv, Åsa; Kneck, Åsa; Koppitz, Andrea Luise; de Wolf-Linder, Susanne; Blanc, Geneviève; Bosshard, Georg; Volken, Thomas,

  2017.

  European academy of nursing science and the Swedish Society of Nursing summer conference 2017 : the future direction of European nursing and nursing research.

  In:

  European Academy of Nursing Science and the Swedish Society of Nursing Summer Conference, Malmö, Sweden, 4-5 July 2017.

  Available from: https://doi.org/10.1186/s12912-017-0218-2

• de Wolf-Linder, Susanne,

  2016.

  Feedback to improve care.

  In:

  Workshop: Cicely Saunders Institute King's College, London, United Kingdom, November 2016.

• de Wolf-Linder, Susanne; Dawkins, Marsha,

  2016.

  Teaching outcome measures.

  In:

  Workshop: King's College, London, United Kingdom, November 2016.

Publications before appointment at the ZHAW

Häne H, Oberholzer R, Walker J, Hopkinson JB, de Wolf-Linder S, Strasser F.(2013) “Psychosocial Consequences of Cancer Cachexia: The Development of an Item Bank”. J Pain Symptom Manage. pii: S0885-3924(13)00147-4. doi: 10.1016/j.jpainsymman.2013.01.008. [Epub ahead of print]

Thomas R Osborne, Christina Ramsenthaler, Susanne de Wolf-Linder, Stephen A Schey, Richard J Siegert, Polly M Edmonds, Irene J Higginson (2014) Understanding what matter most to people with multiple myeloma: a qualitative study of views on quality of life. BMC Cancer 14:496.

Matthew Maddocks, Matthew Jones, Thomas Snell, Bronwen Connolly, Susanne de Wolf-Linder, John Moxham, Gerrard F Rafferty (2014) “Ankle dorsiflexor muscle size, compositionand force with ageing and chronic obstructive pulmonary disease” Exp. Physiol. Aug 2014
99(8) 1078-88.

D Blum, D Koeberle, A Omlin, J Walker, R Von Moos, W Mingrone, S Dewolf-Linder, S Hayoz, S Kaasa, F Strasser, K Ribi (2014)“Feasibility and acceptance of electronic monitoring of symptoms and syndromes using a handheld computer in patients with advanced cancer in daily oncology practice” Supp. Care of Cancer (2014) Sep: 22(9) 2425-34.

Daveson BA., de Wolf-Linder S., Witt J., Newson K., Morris C., Higginson IJ., Evans CJ; BuildCARE: Results of a transparent expert consultation on patient and public involvement in palliative care research. Palliat Med. 2015 Apr 30 pii: 0269216315584875. [Epub ahead of print].

Selman, LE., Daveson, BA., Smith, M., Jonston, B., Rzan, K., Morrison, RS, Pannell, C., McQuillan, R., de Wolf-Linder, S., Pantilat, SZ., Klass, L., Meier, D., Normand, C., Higginson, IJ.(2015) How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA. Age and Ageing, 2016 Nov 3, DOI: dx.doi.org/10.1093/ageing/afw193 [ahead of print]

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